Welcome To My Blog...

This blog follows my journey of 2 different cochlear implants and my condition: Multiple mitochondrial DNA deletions I have started this blog 15 yrs too late but ill try my best to fit it all in! I have packed a lot of medical jargon into my life since I was 8.

There has been happiness and tears but I've come through it all with my family and my friends.I'm profoundly deaf as a result of a condition called Multiple mitochondrial DNA deletions or mitochondrial disease RRM2B as my professor Sir Dough Turnbull calls it! I have had since birth but I didn't find out this til I was 19. I have had 2 cochlear implants (at the age of 8 and then i lost the 1st cochlear implant in my right ear after 7 years due to a bad, accruing ear infection (which I couldnt fight off because of my mitochondrial condition) at the age of 15 and had a 2nd one implanted in my left ear that same year which I have now.

My Story

3 January 2010

Expectations of a CI...

A few people have asked me what to expect of the cochlear implant whether it what the sound is like or what ear they should do etc..
I do try my best not to get their hopes up because a cochlear implant sounds completely weird at first and takes a lot of practice and listening to get to the point where you start hearing "almost normal as possible" because a Cochlear implant is not totally perfect hearing. It is as good as you can get it as you are getting used to each programming map. BUT you DO get used to the map eventually if you keep wearing it and it gets better.

If you wear it every single day and listen to everything and anything, and after several mappings after every other month, you will begin to see the benefits.

it is also better to implant the worse ear, or in my case any ear since I am profoundly deaf.

Everything takes lots of practice with the first few stages of the switch on, and you will get to a point where you hear more clear and hear music, the phone. doorbell, voices.! the list is endless!

The operation is just the first hurdle of a cochlear implant.
Post a Comment