Welcome To My Blog...

This blog follows my journey of 2 different cochlear implants and my condition: Multiple mitochondrial DNA deletions I have started this blog 15 yrs too late but ill try my best to fit it all in! I have packed a lot of medical jargon into my life since I was 8.

There has been happiness and tears but I've come through it all with my family and my friends.I'm profoundly deaf as a result of a condition called Multiple mitochondrial DNA deletions or mitochondrial disease RRM2B as my professor Sir Dough Turnbull calls it! I have had since birth but I didn't find out this til I was 19. I have had 2 cochlear implants (at the age of 8 and then i lost the 1st cochlear implant in my right ear after 7 years due to a bad, accruing ear infection (which I couldnt fight off because of my mitochondrial condition) at the age of 15 and had a 2nd one implanted in my left ear that same year which I have now.

My Story


11 October 2009

Not long now...

There's just a week on Tuesday to my PEG change procedure at Newcastle, I'm still not sure what to expect on the day. All i know is that on the morning I'm going to see the PEG doc and discuss some things such as which type of PEG I want, what's going to happen and the doc to have a look at my PEG and PEG site. In the afternoon, I will have the change done which takes about half an hour or something like that. Hopefully it will all go smoothly with no problems because I have to go home to Huddersfield after it's done. Any problems I may have, I would have to go all the back to Newcastle because they did the procedure and the Huddersfield and Bradford NHS don't work with the PEG that I intend to choose which is the press- stud type of PEG.
The PEG nurse will keep an eye on it though so its no worries! I hope!
As far as i know, I get the procedure done by a local which I'm not looking forward to having after the experience with my muscle biopsy. Hopefully I will cope better with this one! No shivering and crying!

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