Welcome To My Blog...

This blog follows my journey of 2 different cochlear implants and my condition: Multiple mitochondrial DNA deletions I have started this blog 15 yrs too late but ill try my best to fit it all in! I have packed a lot of medical jargon into my life since I was 8.

There has been happiness and tears but I've come through it all with my family and my friends.I'm profoundly deaf as a result of a condition called Multiple mitochondrial DNA deletions or mitochondrial disease RRM2B as my professor Sir Dough Turnbull calls it! I have had since birth but I didn't find out this til I was 19. I have had 2 cochlear implants (at the age of 8 and then i lost the 1st cochlear implant in my right ear after 7 years due to a bad, accruing ear infection (which I couldnt fight off because of my mitochondrial condition) at the age of 15 and had a 2nd one implanted in my left ear that same year which I have now.

My Story

8 October 2009


I've been having some trouble sleeping, the last few nightsI've only managed to close my eyes but not actually sleep... I had a bout of insomnia when I was in hospital too and finally fell alsleep when I just could'nt keep my eyes open because I was that tired. Hopefully that will be the case this time but I dont really want another sleepless night. I'm not really worrying or thinking about the PEG procedure or anything else so I don't know whats causing my insomnia :0S
Hope fully I will get some sleep soon! I certainly need it! Im not focusing very well without it!
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