Welcome To My Blog...

This blog follows my journey of 2 different cochlear implants and my condition: Multiple mitochondrial DNA deletions I have started this blog 15 yrs too late but ill try my best to fit it all in! I have packed a lot of medical jargon into my life since I was 8.

There has been happiness and tears but I've come through it all with my family and my friends.I'm profoundly deaf as a result of a condition called Multiple mitochondrial DNA deletions or mitochondrial disease RRM2B as my professor Sir Dough Turnbull calls it! I have had since birth but I didn't find out this til I was 19. I have had 2 cochlear implants (at the age of 8 and then i lost the 1st cochlear implant in my right ear after 7 years due to a bad, accruing ear infection (which I couldnt fight off because of my mitochondrial condition) at the age of 15 and had a 2nd one implanted in my left ear that same year which I have now.

My Story

5 October 2009

My opinion on a CI YouTube video...

My brother told me about a video on youtube and told me to watch it all so i did...
This is the video

While watching it, i felt a bit angry but then I watched it to the end and saw his point. But I disagree with his point. If anyone waited til 18 to get a cochlear implant, wouldn't it take longer to adjust to sounds if they have been deaf their whole life? If you had just gone deaf, it would be easier to adjust back to the sounds through a cochlear implant the less time you have been deaf whether you are under 18 or over 18.
I think that the earlier you have the implant after going deaf, you are most likely to have better speech skills after speech and language and adjust to the sounds better. The longer you stay deaf before getting a Cochlear implant it can be harder to get back to hearing the sounds and longer to get good speech.
I went to the cochlear implant meet in September, I met a child and he had his cochlear implant when he was a baby and I've seen videos of his positive progession of speech and hearing and hes getting better everyday! I know that some parents can find the decision very hard when its a child and they want the best for them. Either way, whether or not they have the cochlear implant, we are still deaf and part of the deaf community and we have the best of both deaf and hearing worlds. I dont hate my parents for giving me te cochlear implant, I LOVE them for it and they made the right choice for me to give me the cochlear implant when i was 9 years old. If they had left it til I was 18, I probably would have been too scared to go through with the operation and I dont think id have the good speech I have now. I had the help of speech therapists and teachers of the deaf when I was going through the cochlear implant after stage and learning to hear with it. I know my parents made the right choice and they don't feel guilty and neither do I!
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