Welcome To My Blog...

This blog follows my journey of 2 different cochlear implants and my condition: Multiple mitochondrial DNA deletions I have started this blog 15 yrs too late but ill try my best to fit it all in! I have packed a lot of medical jargon into my life since I was 8.

There has been happiness and tears but I've come through it all with my family and my friends.I'm profoundly deaf as a result of a condition called Multiple mitochondrial DNA deletions or mitochondrial disease RRM2B as my professor Sir Dough Turnbull calls it! I have had since birth but I didn't find out this til I was 19. I have had 2 cochlear implants (at the age of 8 and then i lost the 1st cochlear implant in my right ear after 7 years due to a bad, accruing ear infection (which I couldnt fight off because of my mitochondrial condition) at the age of 15 and had a 2nd one implanted in my left ear that same year which I have now.

My Story


18 October 2009

Newcastle awaits...

I'm all set for going up to Newcastle and not really looking forward to it but it will be good to get it over and done with! I'm not overly sure what will happen when I get to the hospital but hopefully it wont be too bad and they wont fiddle about with my PEG too much (well, apart from the pulling the damn thing out and putting a new one in...)
but im hoping it wont hurt too much what with the numbing ness of course...
I will be back with a brand spanking new small PEG which won't bother me like the tube does! I will post the difference on here when its done. I'm pretty sure that it will be very much long awaited!
Gwyn has been around for the last few days, helping me forget about it, going to the cinema we saw UP which is was very funny. Id recommend anyone to go see it! :)
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