Welcome To My Blog...

This blog follows my journey of 2 different cochlear implants and my condition: Multiple mitochondrial DNA deletions I have started this blog 15 yrs too late but ill try my best to fit it all in! I have packed a lot of medical jargon into my life since I was 8.

There has been happiness and tears but I've come through it all with my family and my friends.I'm profoundly deaf as a result of a condition called Multiple mitochondrial DNA deletions or mitochondrial disease RRM2B as my professor Sir Dough Turnbull calls it! I have had since birth but I didn't find out this til I was 19. I have had 2 cochlear implants (at the age of 8 and then i lost the 1st cochlear implant in my right ear after 7 years due to a bad, accruing ear infection (which I couldnt fight off because of my mitochondrial condition) at the age of 15 and had a 2nd one implanted in my left ear that same year which I have now.

My Story


8 September 2009

Silver Patch...

I have since got silver patches from the nurse for my PEG to get it better, it's a bit sore and stingy but I've had to take painkillers for that. Last night I was up most of the night unable to sleep, and i've had to be up early for the funeral of my grandma so ill be getting some sleep tonight! I hope!
I am also looking forward to the C.I meetup in Yoriskhire this saturday! will be good to meet others with Cochlear implants and get to know their experiences and meet in person!
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