Welcome To My Blog...

This blog follows my journey of 2 different cochlear implants and my condition: Multiple mitochondrial DNA deletions I have started this blog 15 yrs too late but ill try my best to fit it all in! I have packed a lot of medical jargon into my life since I was 8.

There has been happiness and tears but I've come through it all with my family and my friends.I'm profoundly deaf as a result of a condition called Multiple mitochondrial DNA deletions or mitochondrial disease RRM2B as my professor Sir Dough Turnbull calls it! I have had since birth but I didn't find out this til I was 19. I have had 2 cochlear implants (at the age of 8 and then i lost the 1st cochlear implant in my right ear after 7 years due to a bad, accruing ear infection (which I couldnt fight off because of my mitochondrial condition) at the age of 15 and had a 2nd one implanted in my left ear that same year which I have now.

My Story


29 September 2009

Groundhog Day...

I've been feeling somewhat out of it the last week or so... like somethings different and I don't like it. I'm not doing much at the moment and im lying in late every day, probably coz I don't see the point in getting up sometimes because the days just gona be the same again.
Hopefully after the PEG change has been done and I've recovered from it, I can go back to volunteering at the school. For now I have a tapestry to do which wont keep me buy for long because its only small but I shall just have to buy more off ebay if i can find any!
For now, its pottering round the house...
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