Welcome To My Blog...

This blog follows my journey of 2 different cochlear implants and my condition: Multiple mitochondrial DNA deletions I have started this blog 15 yrs too late but ill try my best to fit it all in! I have packed a lot of medical jargon into my life since I was 8.

There has been happiness and tears but I've come through it all with my family and my friends.I'm profoundly deaf as a result of a condition called Multiple mitochondrial DNA deletions or mitochondrial disease RRM2B as my professor Sir Dough Turnbull calls it! I have had since birth but I didn't find out this til I was 19. I have had 2 cochlear implants (at the age of 8 and then i lost the 1st cochlear implant in my right ear after 7 years due to a bad, accruing ear infection (which I couldnt fight off because of my mitochondrial condition) at the age of 15 and had a 2nd one implanted in my left ear that same year which I have now.

My Story


2 September 2009

Busy Times...

On my first note, I want to say RIP to my grandma, who sadly passed away on 1st september. My parents are busy with funeral details and the funeral is on Tuesday. I'm glad she went peacefully after a battle against stomach cancer and in a hospice rather than hospital which no one would have been aorund her. I like this pic of her because it;s how she was at home with her headscarf on and she looks all cheery!

On my medical note, my peg is looking better after having some dressings and special cream on my peg site. It could look even better after some more dressings i guess, and faltten that wart type ball that was growing out of my PEG site. I spent the night being woken up by my parents and my brother because the feed pump kept beeping! I had enough of it by 3am and told them to just turn it off! Only to be woken up early by mum in the morning because the nurse was due to come so I got nooooooooo sleep whatsoever!

I am still waiting for a date for my "button" peg procedure which might be a couple of weeks. Apart from that just lots of flopping about!

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