Welcome To My Blog...

This blog follows my journey of 2 different cochlear implants and my condition: Multiple mitochondrial DNA deletions I have started this blog 15 yrs too late but ill try my best to fit it all in! I have packed a lot of medical jargon into my life since I was 8.

There has been happiness and tears but I've come through it all with my family and my friends.I'm profoundly deaf as a result of a condition called Multiple mitochondrial DNA deletions or mitochondrial disease RRM2B as my professor Sir Dough Turnbull calls it! I have had since birth but I didn't find out this til I was 19. I have had 2 cochlear implants (at the age of 8 and then i lost the 1st cochlear implant in my right ear after 7 years due to a bad, accruing ear infection (which I couldnt fight off because of my mitochondrial condition) at the age of 15 and had a 2nd one implanted in my left ear that same year which I have now.

My Story


12 July 2009

Piano Guy...


I went to Bournemouth again for the week to see my boyfriend Gwyn :) I knew he played keyboard and piano but I had only ever heard him play on the keyboard. While I was at his house, i was upstairs and I heard what I THOUGHT might be a cuckoo clock hehe but then as I went down the stairs, I could see Gwyn playing on the piano and it was a lovley tinkly sound to fill a quiet house. :0) All in all a lovely week and I got to see him play in the band that he is in "the sables" I like that I'm in a relationship with a musical guy hehe, and I get to hear all these new sounds that he plays :)
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1 comment:

Julie said...

Sounds like fun! Cute picture.

12 July 2009 at 01:57:00 BST

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