Welcome To My Blog...

This blog follows my journey of 2 different cochlear implants and my condition: Multiple mitochondrial DNA deletions I have started this blog 15 yrs too late but ill try my best to fit it all in! I have packed a lot of medical jargon into my life since I was 8.

There has been happiness and tears but I've come through it all with my family and my friends.I'm profoundly deaf as a result of a condition called Multiple mitochondrial DNA deletions or mitochondrial disease RRM2B as my professor Sir Dough Turnbull calls it! I have had since birth but I didn't find out this til I was 19. I have had 2 cochlear implants (at the age of 8 and then i lost the 1st cochlear implant in my right ear after 7 years due to a bad, accruing ear infection (which I couldnt fight off because of my mitochondrial condition) at the age of 15 and had a 2nd one implanted in my left ear that same year which I have now.

My Story

24 July 2009

No batteries...!

My PEG is still sore and has an infection despite being on 2 weeks of antibiotics. I seem to be come immune quickly to antibiotics after just taking one prescriptions worth. Even when I had my ear infection in my previously implanted ear, all the ear drops, creams and antibiotics, they stopped working on me. I think it took having the PEG and having all my nutrition and vitamins of the feed that gets fed through my PEG to clear it.
I have the docs appointment today to see if anything else can be done for my PEG infection and at least I hope it will be better before my birthday in August. The ABBOT nurse is also coming over on monday to check my PEG out too.
I also called up for batteries for my cochlear implant on Monday, and I didnt recieve any through the post all week and when mum rang up today, she told me they had no recollection of me rinigng up on monday! ahhh but now they are on their way I hope because I only have the 2 spare packs of batteries that my parents keep in mum's bag and dad's car. Hopefully they will arrive!
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