Welcome To My Blog...

This blog follows my journey of 2 different cochlear implants and my condition: Multiple mitochondrial DNA deletions I have started this blog 15 yrs too late but ill try my best to fit it all in! I have packed a lot of medical jargon into my life since I was 8.

There has been happiness and tears but I've come through it all with my family and my friends.I'm profoundly deaf as a result of a condition called Multiple mitochondrial DNA deletions or mitochondrial disease RRM2B as my professor Sir Dough Turnbull calls it! I have had since birth but I didn't find out this til I was 19. I have had 2 cochlear implants (at the age of 8 and then i lost the 1st cochlear implant in my right ear after 7 years due to a bad, accruing ear infection (which I couldnt fight off because of my mitochondrial condition) at the age of 15 and had a 2nd one implanted in my left ear that same year which I have now.

My Story


3 March 2009

Up and Down...!

My weight is on a rollercoaster at the mo! Up and down! I have been all eating, doing my PEG feeds 3 nights a week and excercising once a week on Wii Fit! I don't really see my dietician anymore becausse of new stupid health policies that say they dont need to see me in person and keep an eye on me over the phone. How is that a good policy? I could go down to 6st again for all they care and they wouldnt know it??
At least I have my family keeping an eye on me and my weight! :0) and I'm pretty much happy with how life is at the moment! I'm enjoying my volunteering at the school despite regular changes of classes but I kinda like that change because although I like routine, I also like a variety of things to stop me getting bored easily!
We had a power cut this monring too so i had no net arghhhh worst night mare ever! So in the very long 2 hours that the electricity was off, I started the book Twilight and even though I've seen the film, id like read the book too! :D
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