Welcome To My Blog...

This blog follows my journey of 2 different cochlear implants and my condition: Multiple mitochondrial DNA deletions I have started this blog 15 yrs too late but ill try my best to fit it all in! I have packed a lot of medical jargon into my life since I was 8.

There has been happiness and tears but I've come through it all with my family and my friends.I'm profoundly deaf as a result of a condition called Multiple mitochondrial DNA deletions or mitochondrial disease RRM2B as my professor Sir Dough Turnbull calls it! I have had since birth but I didn't find out this til I was 19. I have had 2 cochlear implants (at the age of 8 and then i lost the 1st cochlear implant in my right ear after 7 years due to a bad, accruing ear infection (which I couldnt fight off because of my mitochondrial condition) at the age of 15 and had a 2nd one implanted in my left ear that same year which I have now.

My Story

26 March 2009

Here we go again...!

I was woken up at 6am! 6am!!! OHH! I was getting up this early for Newcastle Hospital appointment I woke up and my eyes were funny, sort of double visiony and blurry. I rushed downstairs in a panic to tell mum and I cried because that day of all days, I would be seeing a eye doctor at Newcastle! She gave me breakfast and a cup of tea to calm me down and my eyes gradually went back to normal but god it scared me! I dont know why they went like that :(

We set off at 7:30 to make the 3 hr journey up to the hospital. Dad was trying out the Sat Nav for once to see if he could find a faster way there! I listened to the calm songs of JJ cale and Eric Clapton on CD in the car, trying to stay awake! I can never sleep anywhere else put a bed or a comfy sofa!

I texted a few friends along the way too to keep me occupied including my cutie :) and saw the Angel of the North again! I do like seeing that!
We finally got there at 10am, where me and my parents walked endless corridors from the car park and in the hospital, that is one big hospital!! I was to see the eye doc first so we went there and we were waiting for like 2 hours... we got fed up and dad decided to go and get the food from the car! I saw a nice lady at first who checked the basics of my eyes and any problems I have with them which is the double vision when reading or if im tired etc... I then saw another Japanese doctor who told me results of the scan I had on my eyes and vision and what he thought etc... He said my vision is good although my droopy eyes are the problem of what is makeing the double vision and gave the suggestion of the eyelid lift again which I'm a bit against at the moment!

We had a bite to eat and a well earned cuppa before going down more endless corridors to see Prof Turnbull. I saw an Italian doctor first who tested my reflexes and my eyes and pretty much prodded and poked at me! She also gave me a series of Quizzes to answer concerning my health and lifestyle.

Finally, Prof Turnbull came in and told me about more results and outlook etc... The nice nurse we see with him took 10 little bottles of blood from me!! 10!!! My god they are vampires! haha! They wanted more blood for more genetic testing to see how I have got this and if there's anything that can be done! He again mentioned the eyelid lift but he wanted to explain about it... but i am scared about the proedure after what happened to me after the last "routine" operation I had!

They did mention it is only an option should my double vision get worse because they mentioned as I get older, my eye lids MIGHT come further down but we dont know! We dont know what will happen! It's just basically a wait and see game!

Afer being at hospital from 9am til 3pm, we could finally set off my nana's in Middlesbrough! She gave me a piece of nice victoria sponge cake! :D hehe and some Quality street for easter for me and my brother to share. We had a good chat too! hehe

I got home finally at 8 pm very sleepy! :) I was pretty glad to just sit down and curl up on the sofa in front of the Tv with a cuppa! oo and talk to my cutie on skype! :D

Thats Newcastle done for another year!
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