Welcome To My Blog...

This blog follows my journey of 2 different cochlear implants and my condition: Multiple mitochondrial DNA deletions I have started this blog 15 yrs too late but ill try my best to fit it all in! I have packed a lot of medical jargon into my life since I was 8.

There has been happiness and tears but I've come through it all with my family and my friends.I'm profoundly deaf as a result of a condition called Multiple mitochondrial DNA deletions or mitochondrial disease RRM2B as my professor Sir Dough Turnbull calls it! I have had since birth but I didn't find out this til I was 19. I have had 2 cochlear implants (at the age of 8 and then i lost the 1st cochlear implant in my right ear after 7 years due to a bad, accruing ear infection (which I couldnt fight off because of my mitochondrial condition) at the age of 15 and had a 2nd one implanted in my left ear that same year which I have now.

My Story

2 February 2009


Today has been a bit excitable since we have been having snowfall all night! The weather has been forcast bad snowfalls today and tomorrow! Snow has never sticked on the ground or go deep in the previous years! The last time we last had snow deep as this was 1992! So its all been very excitint to go out in it and watch it come down! Febuary 1992

Febuary 2009

i made a heart shape on our lawn using my feet!

It has all been so very fairy tale like standing in the garden spinning around with snowflakes coming down!! I got in from the garden and unleashed a mess of snow on my mums kitchen floor!!

Ah but it was nice having a snow day even if it comes round every 15 yrs!!! haha

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