Welcome To My Blog...

This blog follows my journey of 2 different cochlear implants and my condition: Multiple mitochondrial DNA deletions I have started this blog 15 yrs too late but ill try my best to fit it all in! I have packed a lot of medical jargon into my life since I was 8.

There has been happiness and tears but I've come through it all with my family and my friends.I'm profoundly deaf as a result of a condition called Multiple mitochondrial DNA deletions or mitochondrial disease RRM2B as my professor Sir Dough Turnbull calls it! I have had since birth but I didn't find out this til I was 19. I have had 2 cochlear implants (at the age of 8 and then i lost the 1st cochlear implant in my right ear after 7 years due to a bad, accruing ear infection (which I couldnt fight off because of my mitochondrial condition) at the age of 15 and had a 2nd one implanted in my left ear that same year which I have now.

My Story


3 February 2009

Snow sounds...

Forgot to mentin this on the last blog, I have been hearing a few sounds with snow! It's all very silent when it's actually snowing then the wind slightly blows a cold icy blast past your cochlear implanted ear which is a sort of whooosh. Aksi snow when you are wakling on it sounds very crunchy! There was thudding when snow fell off the trees.
I took a video of the snow falling yesterday, it continued like that for most of the day...

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