Welcome To My Blog...

This blog follows my journey of 2 different cochlear implants and my condition: Multiple mitochondrial DNA deletions I have started this blog 15 yrs too late but ill try my best to fit it all in! I have packed a lot of medical jargon into my life since I was 8.

There has been happiness and tears but I've come through it all with my family and my friends.I'm profoundly deaf as a result of a condition called Multiple mitochondrial DNA deletions or mitochondrial disease RRM2B as my professor Sir Dough Turnbull calls it! I have had since birth but I didn't find out this til I was 19. I have had 2 cochlear implants (at the age of 8 and then i lost the 1st cochlear implant in my right ear after 7 years due to a bad, accruing ear infection (which I couldnt fight off because of my mitochondrial condition) at the age of 15 and had a 2nd one implanted in my left ear that same year which I have now.

My Story


16 February 2009

I am still around...!

I haven't blogged for a bit so I felt I should! It's half term next week so will probably be bored silly but i'll try and find something to keep me occupied! The snow is mostly gone now (boooo!) although it is still cold! At least we are no longer in the minus temperatures! It will soon be spring :0D and the sunshine might actally come out to play! I hope it gets warm soon! I miss sitting outside and reading my book on the swing chair!

I had a good Valentine's weekend and hope everyone else did too! I'm still pondering how to celebrate 15 years of having a CI (wow so long!) I'm sure I can find something! :) If any one has any fun suggestions Please suggest some to me on comments! :D x

On a bad note, I have lost some weight, more than I thought actually! Ive dropped back down to 7 stone 2 pounds when I wanted to stay above 8 stone which is dissapointing but I haven't seen the dietican for few months now... which is bad on the medical profession! I'm lucky to have my parents keeping an eye on me and notifying me if I look like I'm losing weight! It may be nagging but I'm glad they do. I want to stay above 8! I love being curvy and I look better curvy than being a skinny minnie! My mum is going to call up the G.P to see why I haven't been sent an appointment yet! I should be seen at least every 3 months to check up on my weight.
I do love that I live at home because there always someone to tell me to get off my ass and get something to eat and stop being distracted!

My bruise from the fall has just began fading away now! woop! I must stop watching the news too... why do they have such depressing stories on?? It's enough to bring anyone down! So I switch it over to something funnier like "scrubs" yes a hospital comedy! I dont know why I enjoy watching hospital programmes such as House or casualty. My parents go "You've had that done... " like I don't know about it!! haha!
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