Welcome To My Blog...

This blog follows my journey of 2 different cochlear implants and my condition: Multiple mitochondrial DNA deletions I have started this blog 15 yrs too late but ill try my best to fit it all in! I have packed a lot of medical jargon into my life since I was 8.

There has been happiness and tears but I've come through it all with my family and my friends.I'm profoundly deaf as a result of a condition called Multiple mitochondrial DNA deletions or mitochondrial disease RRM2B as my professor Sir Dough Turnbull calls it! I have had since birth but I didn't find out this til I was 19. I have had 2 cochlear implants (at the age of 8 and then i lost the 1st cochlear implant in my right ear after 7 years due to a bad, accruing ear infection (which I couldnt fight off because of my mitochondrial condition) at the age of 15 and had a 2nd one implanted in my left ear that same year which I have now.

My Story

10 October 2008

Quiet & Noisy Enviroments...

I always hate it when I have to go somewhere noisy because I know I’m not going to be hearing the people I’m going there with. I always like to go to a nice quiet café or if there’s an upstairs to a building, I will go upstairs away from the noisy conversation and music blaring. I always take a friend to a quiet place if it’s up me or I’m going to have a good chat with them. My main friends always seem to pick noisy restaurants or we get placed on a table next to a kitchen with a lot of noisy clattering going on. I just find myself going quiet most of the night because I can’t hear a thing that’s going on which is a shame because when my friends all get together and we talk about what we have been getting up to & I always want to know what’s going on with them but I can’t hear a word they are saying because of background noise or they are all talking all at once so I can’t lip-read everyone. I can get the gist of what they are talking about if we were somewhere quiet and put my opinion in, but if we were in a noisy background place. I can’t even do that no matter how hard I try to focus on doing it!

If I can’t hear what a friend says or if they are at the far end of the table and I can’t hear what they are shouting, I sometimes give them my mobile and tell them to write it in text , then give it back to me so I know what they said or something they wanted to say. If the noisy places keep getting picked, I might have to start bringing a notepad with me so they can write stuff down!!! So that’s one my bad points of being deaf/having a cochlear implant which can be a shame because I don’t get to show off my personality and seem shy and quiet which I’m not on a one to one basis! I do let people know my concerns but it always seems to happen and it slips their mind while everything is going on or they think I am ok with listening with my cochlear implant

Cochlear implants can make you hear and give you the confidence to listen & use your speech but not the social interaction with people or group situations. I always tell a new person I’m deaf if I’m in a noisy place because the first place they go for is my ear to talk in to it and I need to see their face so I can lip-read. If it’s a quiet place with not much noise and a one to one basis or two people, I can be more confident and not have to tell them that I am deaf because I can hear them and know what they are talking about. I know some people can be surprised when I tell them in person that I’m deaf as they think my speech and hearing is good which is always a good side to a cochlear implant but it takes a good few years to get to that point but it’s all worth it!
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