Welcome To My Blog...

This blog follows my journey of 2 different cochlear implants and my condition: Multiple mitochondrial DNA deletions I have started this blog 15 yrs too late but ill try my best to fit it all in! I have packed a lot of medical jargon into my life since I was 8.

There has been happiness and tears but I've come through it all with my family and my friends.I'm profoundly deaf as a result of a condition called Multiple mitochondrial DNA deletions or mitochondrial disease RRM2B as my professor Sir Dough Turnbull calls it! I have had since birth but I didn't find out this til I was 19. I have had 2 cochlear implants (at the age of 8 and then i lost the 1st cochlear implant in my right ear after 7 years due to a bad, accruing ear infection (which I couldnt fight off because of my mitochondrial condition) at the age of 15 and had a 2nd one implanted in my left ear that same year which I have now.

My Story

30 October 2008

Cochlear implant sounding board...

I have discovered through the DEAF BLOG that they have launched a new sounding board for Cochlear implants with any questions they wish to ask or help others with you experience of their cochlear implants!
I think its very good and well thought out and you can read on other people's answers and experiences towards their CI's.
Here is the link for the forum on the ear foundation website.
I am also going to put the link for the Ear Foundation website on my links on the side of the blog as well as the forum link!
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