Welcome To My Blog...

This blog follows my journey of 2 different cochlear implants and my condition: Multiple mitochondrial DNA deletions I have started this blog 15 yrs too late but ill try my best to fit it all in! I have packed a lot of medical jargon into my life since I was 8.

There has been happiness and tears but I've come through it all with my family and my friends.I'm profoundly deaf as a result of a condition called Multiple mitochondrial DNA deletions or mitochondrial disease RRM2B as my professor Sir Dough Turnbull calls it! I have had since birth but I didn't find out this til I was 19. I have had 2 cochlear implants (at the age of 8 and then i lost the 1st cochlear implant in my right ear after 7 years due to a bad, accruing ear infection (which I couldnt fight off because of my mitochondrial condition) at the age of 15 and had a 2nd one implanted in my left ear that same year which I have now.

My Story

7 September 2008

Phone Antics...

Since the topic of the moment for CI’s is using the phone, I have never used the phone much even with my Cochlear implant because I tend to text people more. If you get a good clear phone which you can change the volume, then you are more likely to hear what people are saying on the line. It took me a while to come to use the telephone at home when I got my CI because I wasn’t used to using it and talking to people on it. Although now I can pick up the phone whenever, and call whoever I want, I can still miss what people are saying on the phone even if it’s clear and I have to tell them to repeat what they say. If it’s a new person who doesn’t know I’m deaf, I just tell them that I’m deaf and I can have problems hearing on the phone sometimes and they understand if i have to ask them to repeat what they have said.

When I’m on the phone, I am often told to speak more loudly because I have a quiet voice, although when I’m off the phone I’m always loud! I also sometimes use the speaker phone on my mobile or the land line just because it’s easier! I speak to my nana a lot more now when she calls because she lives in Middlesbrough and I don’t get to see her a lot of the time. I wish she lived closer though because she’s so funny at times and I love her!
Another reason I don’t use the phone to talk is because most of my friends are on MSN and I talk to them more on that than the phone. If they aren’t on MSN, we are always texting!
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