Welcome To My Blog...

This blog follows my journey of 2 different cochlear implants and my condition: Multiple mitochondrial DNA deletions I have started this blog 15 yrs too late but ill try my best to fit it all in! I have packed a lot of medical jargon into my life since I was 8.

There has been happiness and tears but I've come through it all with my family and my friends.I'm profoundly deaf as a result of a condition called Multiple mitochondrial DNA deletions or mitochondrial disease RRM2B as my professor Sir Dough Turnbull calls it! I have had since birth but I didn't find out this til I was 19. I have had 2 cochlear implants (at the age of 8 and then i lost the 1st cochlear implant in my right ear after 7 years due to a bad, accruing ear infection (which I couldnt fight off because of my mitochondrial condition) at the age of 15 and had a 2nd one implanted in my left ear that same year which I have now.

My Story


6 September 2008

The cold creeps in...

Last night and today, I felt the first prang of coldness since September started and it took me ages to warm up once I got to bed! What with summer over now, I now have to prepare to wear more layers of clothes for the autumn and winter. I may have put a stone to my weight, but because I have a low weight than the average person of my age, I tend to get cold at the slightest draught coming in the house or if I touch something cold and it takes me some time to warm up! I tend to wear a lot of layers when I’m cold and then when I finally warm up, I have to take it all off coz I all hot again!! So when I’ve taken it off, I get cold again and need to put my jacket on again! Winter is the worst season for me because I can’t stand to go outside because it’s so cold and my feet seize up and go all freezing when I’m waiting for a bus for 5 minutes! My feet & hands are always the coldest because of circulation so they take longer to warm up! People mostly comment on it and I wonder who will ever want to hold my hand because it’s freezing??

My chair that I sit in at home to use my laptop, it’s by the window so when it’s sunny its nice and warm but when it’s cold its always cold and draughty even when the curtains are shut! It took me a year or so to gain my weight and it has improved my overall look but I only got very warm in summer but still finding it hard to warm up in the colder seasons! I have my wheat bag teddy (its shop name is beddybear but i call it benny bear!) which I can microwave and warm up and hes so toasty and cuddly! He’s a life saver when I’m cold!
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