Welcome To My Blog...

This blog follows my journey of 2 different cochlear implants and my condition: Multiple mitochondrial DNA deletions I have started this blog 15 yrs too late but ill try my best to fit it all in! I have packed a lot of medical jargon into my life since I was 8.

There has been happiness and tears but I've come through it all with my family and my friends.I'm profoundly deaf as a result of a condition called Multiple mitochondrial DNA deletions or mitochondrial disease RRM2B as my professor Sir Dough Turnbull calls it! I have had since birth but I didn't find out this til I was 19. I have had 2 cochlear implants (at the age of 8 and then i lost the 1st cochlear implant in my right ear after 7 years due to a bad, accruing ear infection (which I couldnt fight off because of my mitochondrial condition) at the age of 15 and had a 2nd one implanted in my left ear that same year which I have now.

My Story

24 February 2010

Nerve Centre Visit...

Yesterday, I went along to the Nerve Centre in town, they are a drop in centre for people with neurological disorders and their careers, and they do all kinds of activities such as arts and crafts or games. Me and my mum went along yesterday after finding out about them a few weeks ago.

I wasn't sure what to expect when I got there but they were all so nice and welcomed us and while they told my mum about the centre, I was getting stuck into the crocheting as they had someone who was showing us how to do it. I had been wanting to try crochet but never could get the hang of it! Before you know it, 2 hrs flew by and we went home. I am looking forward to going back!
I can go whenever there's any activities on and just join in! It had just been what I was looking for to get me out of the house! :)

l look forward to the next time i go! and see what else is going on! :D
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