Welcome To My Blog...

This blog follows my journey of 2 different cochlear implants and my condition: Multiple mitochondrial DNA deletions I have started this blog 15 yrs too late but ill try my best to fit it all in! I have packed a lot of medical jargon into my life since I was 8.

There has been happiness and tears but I've come through it all with my family and my friends.I'm profoundly deaf as a result of a condition called Multiple mitochondrial DNA deletions or mitochondrial disease RRM2B as my professor Sir Dough Turnbull calls it! I have had since birth but I didn't find out this til I was 19. I have had 2 cochlear implants (at the age of 8 and then i lost the 1st cochlear implant in my right ear after 7 years due to a bad, accruing ear infection (which I couldnt fight off because of my mitochondrial condition) at the age of 15 and had a 2nd one implanted in my left ear that same year which I have now.

My Story


5 February 2010

It's come round fast...

I have got this years appointment to go to Newcastle in March for the usual tests I have every year and quite getting fed up of it now but I know it needs to be done to find out how the condition is progressing. I'm also going to try and be brave enough to ask the Qs I have wrote down in my little notepad to ask the eye doc about the eyelid lift op.

i know it may be some time before it gets to the time to do the actual op as I'm not sure about the waiting list. I know it needs to be done now because its affecting my eyes. My eyelids have drooped down so far that my eyelashes sorta cover my eyes and that makes my eyesight funny.

I'm just try not to worry til it actually comes round! THEN I can be scared! :P
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