Welcome To My Blog...

This blog follows my journey of 2 different cochlear implants and my condition: Multiple mitochondrial DNA deletions I have started this blog 15 yrs too late but ill try my best to fit it all in! I have packed a lot of medical jargon into my life since I was 8.

There has been happiness and tears but I've come through it all with my family and my friends.I'm profoundly deaf as a result of a condition called Multiple mitochondrial DNA deletions or mitochondrial disease RRM2B as my professor Sir Dough Turnbull calls it! I have had since birth but I didn't find out this til I was 19. I have had 2 cochlear implants (at the age of 8 and then i lost the 1st cochlear implant in my right ear after 7 years due to a bad, accruing ear infection (which I couldnt fight off because of my mitochondrial condition) at the age of 15 and had a 2nd one implanted in my left ear that same year which I have now.

My Story


29 March 2018

No sleep...zzzz...

I haven’t been sleeping very well according my fit bit my heart rate resting is 95 a beat! I think it’s because I’m excited about tts becalm excited about future things! Like the lily foundation family eeekend n maybe go back to college and vollenteering! If that goes well maybe a new house and job?


I’ve been doing bracelets for Faye n her. Leigh’s network stalls , that has kept me busy as well as organizing my life n room.

Then maybe a holiday abroad somewhere flat so I can use my new walker n wheelchair!

I’m also getting good skin n nails thanks to antibiotics

I’m on sleeping tablets at the mo to help me relax n sleep a good well earned rest!

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