Welcome To My Blog...

This blog follows my journey of 2 different cochlear implants and my condition: Multiple mitochondrial DNA deletions I have started this blog 15 yrs too late but ill try my best to fit it all in! I have packed a lot of medical jargon into my life since I was 8.

There has been happiness and tears but I've come through it all with my family and my friends.I'm profoundly deaf as a result of a condition called Multiple mitochondrial DNA deletions or mitochondrial disease RRM2B as my professor Sir Dough Turnbull calls it! I have had since birth but I didn't find out this til I was 19. I have had 2 cochlear implants (at the age of 8 and then i lost the 1st cochlear implant in my right ear after 7 years due to a bad, accruing ear infection (which I couldnt fight off because of my mitochondrial condition) at the age of 15 and had a 2nd one implanted in my left ear that same year which I have now.

My Story


22 March 2018

mental health ..

recently due to lack of sleep with my mitochondrial disease i have suffered a set back mentally .
i have have had to have my medication reviewed by Dr Hamad and i need to sleep i have had my dose of olanzapine increased to 15mg

i have an appointment for a  sleep study in April as lack of sleep is leaving me exhausted  hopefully they can come up with a cure for sleeplessness as its driving me insane. Leaving me sleeping for 3 to 5 hours a night.

i have also been given sleeping tablets only to be taken when necessary
i will report back after doing my sleep study at ;leeds st james.
bye for now

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