Welcome To My Blog...

This blog follows my journey of 2 different cochlear implants and my condition: Multiple mitochondrial DNA deletions I have started this blog 15 yrs too late but ill try my best to fit it all in! I have packed a lot of medical jargon into my life since I was 8.

There has been happiness and tears but I've come through it all with my family and my friends.I'm profoundly deaf as a result of a condition called Multiple mitochondrial DNA deletions or mitochondrial disease RRM2B as my professor Sir Dough Turnbull calls it! I have had since birth but I didn't find out this til I was 19. I have had 2 cochlear implants (at the age of 8 and then i lost the 1st cochlear implant in my right ear after 7 years due to a bad, accruing ear infection (which I couldnt fight off because of my mitochondrial condition) at the age of 15 and had a 2nd one implanted in my left ear that same year which I have now.

My Story


21 July 2012

new hairdo n peg...

Was a busy day yesterday! i had to be up early for the hairdressers i got a new fringe put on my hair coz my hiar kept annoying me with it always getting in my face luckily i suit fringes!
The nurse came soon after to change my PEG a week early because ive been having a few leakage infection probs so she took a swab as well as changing the PEG. its been dry so far.  Lets hope it stays that way!

here is my new hairdo  and ive been keeping busy doing lots of crafts and chiling out with my carer victoria we have been to the pet stop a few times coz im hoping to get a bird as a pet ive seen one i like but i hope they dont sell him before i can buy him!
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