Welcome To My Blog...

This blog follows my journey of 2 different cochlear implants and my condition: Multiple mitochondrial DNA deletions I have started this blog 15 yrs too late but ill try my best to fit it all in! I have packed a lot of medical jargon into my life since I was 8.

There has been happiness and tears but I've come through it all with my family and my friends.I'm profoundly deaf as a result of a condition called Multiple mitochondrial DNA deletions or mitochondrial disease RRM2B as my professor Sir Dough Turnbull calls it! I have had since birth but I didn't find out this til I was 19. I have had 2 cochlear implants (at the age of 8 and then i lost the 1st cochlear implant in my right ear after 7 years due to a bad, accruing ear infection (which I couldnt fight off because of my mitochondrial condition) at the age of 15 and had a 2nd one implanted in my left ear that same year which I have now.

My Story


5 February 2011

Touch phones,...

My phone is falling apart! oh nooo. its been a while since i lookied for phones since ive had my trusty phone for about 2 and half years and now the keypad is falling off!! too much texting?
Anyway, i looked at the latest phones and most of them seem to be touch screen kinda phones and ive never really been a fan of them! i want ny phone to look like a phone! I ususally went for sony erricson for the way it sounded clear when i take a call or cal someone.But now even sony erricsons seem to be going into touch screens too1 I worry aboutt touch screen side of things because of my cochlear implant.  ive never touched touch screens and then touched my cochlear implant but if they are anything like tv screens i worry they will scramble my MAP so ive sent an email to the cochlear implant centre to see if they are safe to use with cochlear implants.  if they are ok, i may consider one and enlist the help of my brother to help me look for one! anyway apart from that the left eye still feels strange and i keep closing it to foc us but ill ask about that at my next hospital review!
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