Welcome To My Blog...

This blog follows my journey of 2 different cochlear implants and my condition: Multiple mitochondrial DNA deletions I have started this blog 15 yrs too late but ill try my best to fit it all in! I have packed a lot of medical jargon into my life since I was 8.

There has been happiness and tears but I've come through it all with my family and my friends.I'm profoundly deaf as a result of a condition called Multiple mitochondrial DNA deletions or mitochondrial disease RRM2B as my professor Sir Dough Turnbull calls it! I have had since birth but I didn't find out this til I was 19. I have had 2 cochlear implants (at the age of 8 and then i lost the 1st cochlear implant in my right ear after 7 years due to a bad, accruing ear infection (which I couldnt fight off because of my mitochondrial condition) at the age of 15 and had a 2nd one implanted in my left ear that same year which I have now.

My Story

18 January 2011

Dissolve, stitches, dissolve...

My eyes seem to be getting there now. the right is fully healed but the left still has some tiny stitches that are refusing to budge and dissolve! They arent sore or anything but wondering why its taking so long for them to come out. Even the local nurse didnt want to attempt to take them out!
Last night i was awake half the night with a very sore chest after all the coughing ive been doing, it was so bad it felt like heartburn and didnt go til the monring when i had some paracetamol but at least i had some sleep.
im not sure how im feeling about how the eyes look so far. yes they are open and im seeing ok (although still closing one eye to focus) theres not any double vision unless im tired and they tend to get achey easily.
i havet had open eyes since i was a kid, even when i was a teen i never really noticed that my eyelids were over my pupils til a doctor pointed it all out at 18. im not too bothered about how they look anyway. the op was required to keep them open rather than make them look better but im happy with them anyway, i can see. i can hear (with the ci) and am happy.
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