Welcome To My Blog...

This blog follows my journey of 2 different cochlear implants and my condition: Multiple mitochondrial DNA deletions I have started this blog 15 yrs too late but ill try my best to fit it all in! I have packed a lot of medical jargon into my life since I was 8.

There has been happiness and tears but I've come through it all with my family and my friends.I'm profoundly deaf as a result of a condition called Multiple mitochondrial DNA deletions or mitochondrial disease RRM2B as my professor Sir Dough Turnbull calls it! I have had since birth but I didn't find out this til I was 19. I have had 2 cochlear implants (at the age of 8 and then i lost the 1st cochlear implant in my right ear after 7 years due to a bad, accruing ear infection (which I couldnt fight off because of my mitochondrial condition) at the age of 15 and had a 2nd one implanted in my left ear that same year which I have now.

My Story

9 February 2011


I had the physiotherapist over yesterday for a reivew on how they can help me. We had a long chat about my muscles and how/where they ache/stick and the history of my mitochondrial condition.
She gave me some 3 excercises to try once a day to build up my strength in my muscles. She said it wasnt about being flexible or fast but to try and strength up the tummy core parts so it can help me to use my back and the bottom half of my body more because the physio told me im using more of my upperbody to get up and down etc or do things. she was also concerned about the way i walk because of my feet when they are relaxed sort of flop forward rather than stay upright so she hopes the exercises will help that.
other thatn that i found out im suffering from a viral infection and the doc doesnt have a time stamp on how long it will be before i get better. he gave me medicene for the mucus thats sticking in my throat. i also emailed Newcastle to let them know and they replied back saying the GP told me all the right thingjs and i just have to wait it out and continue my feeds over night.
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