Welcome To My Blog...

This blog follows my journey of 2 different cochlear implants and my condition: Multiple mitochondrial DNA deletions I have started this blog 15 yrs too late but ill try my best to fit it all in! I have packed a lot of medical jargon into my life since I was 8.

There has been happiness and tears but I've come through it all with my family and my friends.I'm profoundly deaf as a result of a condition called Multiple mitochondrial DNA deletions or mitochondrial disease RRM2B as my professor Sir Dough Turnbull calls it! I have had since birth but I didn't find out this til I was 19. I have had 2 cochlear implants (at the age of 8 and then i lost the 1st cochlear implant in my right ear after 7 years due to a bad, accruing ear infection (which I couldnt fight off because of my mitochondrial condition) at the age of 15 and had a 2nd one implanted in my left ear that same year which I have now.

My Story

5 December 2009


With my eyes getting strained, I am experiencing headaches more. I can have good days and bad days. With the bad days, where i have to go rest my eyes and have a sleep. Hopefully if i have the eyelid op, that will solve that part that i don't have to strain my eyes anymore. But I know that the eyelid lift wont be for a while yet, maybe late 2010.

But today I have been listening to Christmas songs! And all the christmas fairy lights are up! The Xmas tree will be later this week. :)
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