Welcome To My Blog...

This blog follows my journey of 2 different cochlear implants and my condition: Multiple mitochondrial DNA deletions I have started this blog 15 yrs too late but ill try my best to fit it all in! I have packed a lot of medical jargon into my life since I was 8.

There has been happiness and tears but I've come through it all with my family and my friends.I'm profoundly deaf as a result of a condition called Multiple mitochondrial DNA deletions or mitochondrial disease RRM2B as my professor Sir Dough Turnbull calls it! I have had since birth but I didn't find out this til I was 19. I have had 2 cochlear implants (at the age of 8 and then i lost the 1st cochlear implant in my right ear after 7 years due to a bad, accruing ear infection (which I couldnt fight off because of my mitochondrial condition) at the age of 15 and had a 2nd one implanted in my left ear that same year which I have now.

My Story


9 April 2018

The land of nod...I f

 I finally got 9 htrs sleep n feel refreshed the sun was streaming through the blinds after a night of just watching tb no iPad n no phone,
Since I didn’t know what to do  with my hands so I did colouribg , I did some knitting na bad for my self n mum .
I’m still on the anti dressants n 3 sleeping laps later I finally felt tired n fell asleep!
I’m on skips fruit n yogurts  jellies so it goes down easy n I don’t cough it up
I still love tea but I’ve cut down because of the caffeine but I drink my vitamin bottle drink or orange juic
Other last few days without sleep I got high on nail varnish n I felt fuzzy I saw double I’m getting a new prescription at vision evPress  to help me see the needle eye when cross stitch but that’s not til Friday so I’ll do dot to dot
painting n I will knit the cushhiom case mum wants,
I would love to go back to college but my body isn’t strong enough so I though about the open university!
Watch this space
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