Welcome To My Blog...

This blog follows my journey of 2 different cochlear implants and my condition: Multiple mitochondrial DNA deletions I have started this blog 15 yrs too late but ill try my best to fit it all in! I have packed a lot of medical jargon into my life since I was 8.

There has been happiness and tears but I've come through it all with my family and my friends.I'm profoundly deaf as a result of a condition called Multiple mitochondrial DNA deletions or mitochondrial disease RRM2B as my professor Sir Dough Turnbull calls it! I have had since birth but I didn't find out this til I was 19. I have had 2 cochlear implants (at the age of 8 and then i lost the 1st cochlear implant in my right ear after 7 years due to a bad, accruing ear infection (which I couldnt fight off because of my mitochondrial condition) at the age of 15 and had a 2nd one implanted in my left ear that same year which I have now.

My Story


30 October 2017

nibbles...

i have been on the soft food diet for a few weeks now and also having protein shakes through my PEG they don’t half make you feel bloated! i have been eating skips yogurts things that melt on your tounge but in the last week i have been a bit braver and tried harder foods such as brussels pate and tuc biscuits they went down my throat easier.

in a few weeks we have an appointment to see professor turnbull we weren’t due to see him til next year but as i was in hospital for pneumonia he wants to see us sooner and get an x-ray on my chest and blood tests.
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