Welcome To My Blog...

This blog follows my journey of 2 different cochlear implants and my condition: Multiple mitochondrial DNA deletions I have started this blog 15 yrs too late but ill try my best to fit it all in! I have packed a lot of medical jargon into my life since I was 8.

There has been happiness and tears but I've come through it all with my family and my friends.I'm profoundly deaf as a result of a condition called Multiple mitochondrial DNA deletions or mitochondrial disease RRM2B as my professor Sir Dough Turnbull calls it! I have had since birth but I didn't find out this til I was 19. I have had 2 cochlear implants (at the age of 8 and then i lost the 1st cochlear implant in my right ear after 7 years due to a bad, accruing ear infection (which I couldnt fight off because of my mitochondrial condition) at the age of 15 and had a 2nd one implanted in my left ear that same year which I have now.

My Story


2 October 2017

Mito spoils my tea......

Sadly i must have caught a bug when i was at the lily foundation weekend as i could not stop coughing and we decided to go to to A n E as it wasnt letting up we thought i might just get some antibiotics or something like that but i got admitted that night for pneumonia  they gave me antibiotics through a drip as well as fluids i was in hospital for a week but even at home im suffering as im nil by mouth til i see a speech therapist and i have a fluoroscopic swallowing exam to see if food and drink is going down the right way. The drs told me that it might happen again unless we got to see someone but im finding it frustrating that i cant eat or drink i miss my cup of tea but i have to wait another week to see this speech therapist so ill have to wait and see what happens  

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