Welcome To My Blog...

This blog follows my journey of 2 different cochlear implants and my condition: Multiple mitochondrial DNA deletions I have started this blog 15 yrs too late but ill try my best to fit it all in! I have packed a lot of medical jargon into my life since I was 8.

There has been happiness and tears but I've come through it all with my family and my friends.I'm profoundly deaf as a result of a condition called Multiple mitochondrial DNA deletions or mitochondrial disease RRM2B as my professor Sir Dough Turnbull calls it! I have had since birth but I didn't find out this til I was 19. I have had 2 cochlear implants (at the age of 8 and then i lost the 1st cochlear implant in my right ear after 7 years due to a bad, accruing ear infection (which I couldnt fight off because of my mitochondrial condition) at the age of 15 and had a 2nd one implanted in my left ear that same year which I have now.

My Story

27 March 2014

weak neck...

i have been overdoing it lately and i think its catching up with me :( i have been struggling to sleep due to my achey muscles and get comfortable and a few late nights! (i know! naughty me!!) i think ill take it easy the next few days! 
my neck and arms are the worst affected at mo i couldnt even manage to put my cochlear implant on with out getting out of breath and had to rest! im feeling a bit deflated but i will get there!  Always do!
Post a Comment