Welcome To My Blog...

This blog follows my journey of 2 different cochlear implants and my condition: Multiple mitochondrial DNA deletions I have started this blog 15 yrs too late but ill try my best to fit it all in! I have packed a lot of medical jargon into my life since I was 8.

There has been happiness and tears but I've come through it all with my family and my friends.I'm profoundly deaf as a result of a condition called Multiple mitochondrial DNA deletions or mitochondrial disease RRM2B as my professor Sir Dough Turnbull calls it! I have had since birth but I didn't find out this til I was 19. I have had 2 cochlear implants (at the age of 8 and then i lost the 1st cochlear implant in my right ear after 7 years due to a bad, accruing ear infection (which I couldnt fight off because of my mitochondrial condition) at the age of 15 and had a 2nd one implanted in my left ear that same year which I have now.

My Story

27 March 2014

three parent IVF

i have seen on the news this week and on bbc The one show and it was talking about the pros and cons of the three parent IVF treatment for people who arent strong enough to carry a baby to term or pass on mitochondrial disease like me 
i might want a family one day but NOT if  it can pass my mito disease on to baby! Thats what the good thing about three parent IVF is about and could help loads of other people in my situation who want a healthy child like any normal person wants!

Above is a video that explains how three parent IVF works!
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