Welcome To My Blog...

This blog follows my journey of 2 different cochlear implants and my condition: Multiple mitochondrial DNA deletions I have started this blog 15 yrs too late but ill try my best to fit it all in! I have packed a lot of medical jargon into my life since I was 8.

There has been happiness and tears but I've come through it all with my family and my friends.I'm profoundly deaf as a result of a condition called Multiple mitochondrial DNA deletions or mitochondrial disease RRM2B as my professor Sir Dough Turnbull calls it! I have had since birth but I didn't find out this til I was 19. I have had 2 cochlear implants (at the age of 8 and then i lost the 1st cochlear implant in my right ear after 7 years due to a bad, accruing ear infection (which I couldnt fight off because of my mitochondrial condition) at the age of 15 and had a 2nd one implanted in my left ear that same year which I have now.

My Story

27 December 2012

Xmas is over...

Well christmas is over for another year! and im still stuck with the huge cyst on my eyelid it looks awrful that wont even put a pic on here til im sure i can get it sorted out. which wont be til Feburary urgh so long to wait! iits also really sore1 hope my mito eye doc can sort it out coz its obviously caused by the brow suspension. i dont know if he will have to take it out altogether or will just might be able to salvage it but il have to wait to Feburay til i get those result as il be off to newcaslte in feburary when il having  a full MOT on my mito! to see how or if my mito has got worse or is just remaining the same. i havent really had an episode for a while where i cant get out of bed. Before then i see the eye doc at he local hospital and she will collarbrate with the mito doc in newcastle to how the cyst is.
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