Welcome To My Blog...

This blog follows my journey of 2 different cochlear implants and my condition: Multiple mitochondrial DNA deletions I have started this blog 15 yrs too late but ill try my best to fit it all in! I have packed a lot of medical jargon into my life since I was 8.

There has been happiness and tears but I've come through it all with my family and my friends.I'm profoundly deaf as a result of a condition called Multiple mitochondrial DNA deletions or mitochondrial disease RRM2B as my professor Sir Dough Turnbull calls it! I have had since birth but I didn't find out this til I was 19. I have had 2 cochlear implants (at the age of 8 and then i lost the 1st cochlear implant in my right ear after 7 years due to a bad, accruing ear infection (which I couldnt fight off because of my mitochondrial condition) at the age of 15 and had a 2nd one implanted in my left ear that same year which I have now.

My Story

17 December 2012

Another op urgh...

what is it with me and infections??  i have been fighiting an infection in my eyelid wihich is a big cyst on my lefft eyelid.
i have been trying to fight it off and make it smaller with hot conpresses, oral antibioitcs and eye antibitoics but to no avail its just got bigger and bigger urgh
so when we emailed newcastle where i had it done, the eye doc said it might be worth staying in and having another operation under local anestentic which i really didnt want.

They may have to take the whole brow suspention out alltogether which i really dodnt want either. but i hate how the cyst looks. its just about hidden by my fringe which helps
it doesnt help my eyesight any good either because the cyst is pushing the eyelid down. and im also worried about if it will droop more back to how it was before but hopefully they can try and save the eyelid from doing that. 

The face is the first thing that everyone looks at and all they see is a giant cyst on my eyelid and ask what its there for. When i look in the mirror i see it this big blob on my eyelid and wonder what other people might think of it. hopefully my doctor can salvage the brow suspension and get rid of the cyst. but at least it wont be til feb next year. il try and get a pic of it before and after
That is the plastic surgeons job to make sure it doesnt disfigure my eyelid coz the cyst is a bit big so hopefully they can get rid of it without disfiguring the eyelid.
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