Welcome To My Blog...

This blog follows my journey of 2 different cochlear implants and my condition: Multiple mitochondrial DNA deletions I have started this blog 15 yrs too late but ill try my best to fit it all in! I have packed a lot of medical jargon into my life since I was 8.

There has been happiness and tears but I've come through it all with my family and my friends.I'm profoundly deaf as a result of a condition called Multiple mitochondrial DNA deletions or mitochondrial disease RRM2B as my professor Sir Dough Turnbull calls it! I have had since birth but I didn't find out this til I was 19. I have had 2 cochlear implants (at the age of 8 and then i lost the 1st cochlear implant in my right ear after 7 years due to a bad, accruing ear infection (which I couldnt fight off because of my mitochondrial condition) at the age of 15 and had a 2nd one implanted in my left ear that same year which I have now.

My Story


29 August 2010

over the cold..

2 weeks , lots of sleep, feeds every night and a presciption of antibiotics and im over my cold! i was feeling pretty crappy and couldnt be bothered to do anything and ive hauled my ass out of bed to do some crafts, washing and chill out. i had a week of feeling very heavy on the chest and strugling to get any kinda air up my nose! (despite using a sniffer) but with the help of some vapour rub under my nose i was finally able to sleep after 3 days of being awake coughing and spluttering! Ive almost finsihed my antibioitcs and im still feeling tired from it all but feeling much better than i did! :) Having the feed on every night helped me too because I hardly ate while i had the cold as the coughing took its toll on my swallowing.. so only after a week of feeds eating nothing i started off eating yogurts and jelly to go down easy and get my swallowing stronger.
only bad news is my mums now caught the cold aw...
it hasnt been much of a summer with all the rain so the cold has been a factor with me and ive had to stay wrapped up nice and warm!
Post a Comment