Welcome To My Blog...

This blog follows my journey of 2 different cochlear implants and my condition: Multiple mitochondrial DNA deletions I have started this blog 15 yrs too late but ill try my best to fit it all in! I have packed a lot of medical jargon into my life since I was 8.

There has been happiness and tears but I've come through it all with my family and my friends.I'm profoundly deaf as a result of a condition called Multiple mitochondrial DNA deletions or mitochondrial disease RRM2B as my professor Sir Dough Turnbull calls it! I have had since birth but I didn't find out this til I was 19. I have had 2 cochlear implants (at the age of 8 and then i lost the 1st cochlear implant in my right ear after 7 years due to a bad, accruing ear infection (which I couldnt fight off because of my mitochondrial condition) at the age of 15 and had a 2nd one implanted in my left ear that same year which I have now.

My Story

15 July 2010

Yorkshire Sculpture Park...

Yesterday, I was woken early by mum (yes I get woken by MUM alarm!) I have had vibrating alarms in the past and I always switched them off! However, I DID get a fire alarm vibrating alarm for my bed which would defo wake me which I hope never goes off because it means theres theres a FIRE! Anyway, I was woken by mum because it was PEG change day, it hurt a bit more coming out today even though it wasn't a studen nurse, it hurt because around the PEG site was sore. It does that occasionally and needs some kinda steriod cream on the skin around it. It didn't hurt that much though and it was quick.

After I recovered from that, parents asked if I wanted to go toYorkshire Sculpture park and get out of the house for a bit. I was a bit grumbly because I was tired, but i went anyway and saw some awesome style sculptures which were all spread out over a few acres of land, It was just about warm to go round for a walk and take some pics. I moaned a bit with all the walking we did becuase it was a longggg walk for my little weak legs to cope. Mum did offer to get a wheel chair from reception but stubborn me said "no, I'll be ok". SO today my legs are sore when I walk about. Anyway, I've learnt my lesson. If its gonna be al long day out, dont refuse a wheelchair! We have a trip to London coming up soon, so parents hired a wheelchair for those long days out. Beats me moaning that I'm geting tired and want to go back to the hotel and ruin my parents day out?

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