Welcome To My Blog...

This blog follows my journey of 2 different cochlear implants and my condition: Multiple mitochondrial DNA deletions I have started this blog 15 yrs too late but ill try my best to fit it all in! I have packed a lot of medical jargon into my life since I was 8.

There has been happiness and tears but I've come through it all with my family and my friends.I'm profoundly deaf as a result of a condition called Multiple mitochondrial DNA deletions or mitochondrial disease RRM2B as my professor Sir Dough Turnbull calls it! I have had since birth but I didn't find out this til I was 19. I have had 2 cochlear implants (at the age of 8 and then i lost the 1st cochlear implant in my right ear after 7 years due to a bad, accruing ear infection (which I couldnt fight off because of my mitochondrial condition) at the age of 15 and had a 2nd one implanted in my left ear that same year which I have now.

My Story

26 July 2010


Sometimes I feel like friends are dfifting away from me, I mean I talk to some of them on MSN and things like that ocassionally but some i havent talked to for a while. I know they can't help being busy and getting on with their lives and jobs and it takes a few weeks or months to organize a get together.
I spend a lot of time on my own at home and only mostly get out only for appointmetns to hospital or things like that. i try and keep myslef busy at home doing crafts or things like that, I've even taken up pen=paling just so i can get ou of the house to post the letter! Something to movitvate me to walk the 10 mins there and 10 mins back from the post box. Mum said that's all l need just to excercise my legs and keep them moving. it seems when I walk on my own, I walk FASTER I walk slow there but then I start up walking faster on the way back because my heart is pumping a bit too much due to the lack of energy in my body and i get a bit breathless by the time i reach back home! It's like the faster I walk, the faster i get there and have a break. But it's all good! Keeps my mind busy too! Having too much time on your hands can make you go a bit crazy to say the least!
and in other stories, I saw the finished result picture of my friend's eyelid op, now the bruising and swelling has gone, it looks quite good. I'm looking forward to the finished result of mine although not to the actual operations!! The first is all orgnaised at the moment so hopefully things will go alriight!!
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