Welcome To My Blog...

This blog follows my journey of 2 different cochlear implants and my condition: Multiple mitochondrial DNA deletions I have started this blog 15 yrs too late but ill try my best to fit it all in! I have packed a lot of medical jargon into my life since I was 8.

There has been happiness and tears but I've come through it all with my family and my friends.I'm profoundly deaf as a result of a condition called Multiple mitochondrial DNA deletions or mitochondrial disease RRM2B as my professor Sir Dough Turnbull calls it! I have had since birth but I didn't find out this til I was 19. I have had 2 cochlear implants (at the age of 8 and then i lost the 1st cochlear implant in my right ear after 7 years due to a bad, accruing ear infection (which I couldnt fight off because of my mitochondrial condition) at the age of 15 and had a 2nd one implanted in my left ear that same year which I have now.

My Story

7 June 2010

Getting stronger...

i am getting stronger every day now, woo hoo i have been having my feed every night and going to bed early coz I am basically shattered of the energy I've been using up during the day. I am now able to walk about unaided and go up and down the stairs unaided which I am happy about because stairs scare me when I'm weak with no energy. I always seem to have one weak leg that might just " go" if you know what i mean. i couldn't even put my own cochlear implant on because I couldn't lift my arms up enough to do it. I can do it now thankfully. Mum never knows where the magnet actually goes and with the hair in the way, the coil kept falling off!
I haven't managed to eat anything full yet apart from the usual water and jelly which is making me frustrated because I want to get back to eating something yummy such as my cakes and snacks! At the moment, i tried a skip * the crisp snack type* earlier but it didn't go well as I coughed when I swallowed it. So I tried a custard yogurt and that went down more easily. I have some antibiotics to clear anything on my chest that might stop me swallowing properly. I'm still happy that I can have my cuppa tea though ahh even if it is through a straw! Its been a frustrating couple of days, but I'm getting somewhere now! ON my feet and doing what I usually do! :D Thank god for my family and the bf! Dunno what i'd do without them!
Post a Comment