damage control...

today i found my mum emailing prof turnbull about  that he wanted me to have an MRIs and mum was telling that how im not allowed to have them haha he forgot i have a cochlear implant like most people do.

she also wrote worried about how my forgetfulness is doing and she wondered if it was an effect of my near death experience when i stopped breathing for a few minutes she thought i might have a tiny bit of brain damage but prof turbull will look into that in our next meet up in april.  he also wants me to have another EEG urgh i hated the last one i had last year those electric shocks to your hand but it was bearable 
im also hoping to get some answers from the blood tests he took last year 

im also having more trouble with my balance i seem to keep bumping into doors and cupboards il have to do some more exercises to help that . 

happy new year

a new year is brewing it has been good for me (apart from the anxiety) but over all its been good  i had a good holiday in south wales with my parents ive made new friends via my fb mito group which is going rather well i couldnt imagine how many people were gonna join but we have nearly 900 members all helping one another or just being there to know what we mito warriors  are going through. i shall leave it there happy new year and hope its a healthy 2015 for you all x

merry xmas

to my followers and fellow blogger i would like to wish you all a happy christmas and a healthy new year hope it will be a good 2015!

wow time flies...

wow how time flies since i was diagnosed 10 years ago in 2004 it was this time of months when i was misdiagnosed with mystmeia  gravis and i still cant spell it! they started me on treatment on it thinking i had that i was so depressed over that christmas in 2003 thinking my life was over. it wasnt over at all but had to make a few life changes and some meds to keep my mito stable 

nowdays i dont think mito disease is NOT a death sentence its always the infections we catch that harms us and i can still live with  it. i have my family and carers and brilliant doctors that cant do enough for me and they make life easier.Thank you 

xmas shopping...

today i went sxmas hopping with my helper friend which was good coz it was good to get out and do something for my mental health even if i dont like it much but it does me the world of good to get some fresh air even if its gloomy outside!

getting there...

as my title says i am getting there and i hope il be back to my old self over xmas. its still so hard having anxiety though as no day is the same although i wish it was .i took a big step getting back to my self though and went xmas clothes shopping with my mum and dad and i have a nice outfit for xmas dayso thats one thing towards getting better.

update...

i am to see a  physiologist referred by my mental doctors  to get down to the  bottom of my anxiety i hope it helps

slowly getting there...

im slowly getting better from my anxiety and hoping to be better for xmas  

i am having trouble with anexity  at the moment

new meds...

im on anti depressants and anxiety meds to keep me sane