Welcome To My Blog...

This blog follows my journey of 2 different cochlear implants and my condition: Multiple mitochondrial DNA deletions I have started this blog 15 yrs too late but ill try my best to fit it all in! I have packed a lot of medical jargon into my life since I was 8.

There has been happiness and tears but I've come through it all with my family and my friends.I'm profoundly deaf as a result of a condition called Multiple mitochondrial DNA deletions or mitochondrial disease RRM2B as my professor Sir Dough Turnbull calls it! I have had since birth but I didn't find out this til I was 19. I have had 2 cochlear implants (at the age of 8 and then i lost the 1st cochlear implant in my right ear after 7 years due to a bad, accruing ear infection (which I couldnt fight off because of my mitochondrial condition) at the age of 15 and had a 2nd one implanted in my left ear that same year which I have now.

My Story

22 February 2020

Breathing appointment

I forgot to update my Leeds appointment where I go for my breathing appointments. The doc was super happy about my breathing since I starting using my breathing mask mask overnight. (did imention I have a breathing mask machine and cough machine in my room now??)anyway It took me a whole while getting used to wearing the mask overnight but 6 months on im used to it now. I give myself one day off from it n now my breathing dr has allows me to use the cough machine once a week which is good because I hate it!   I have tried to get back to gym but my balance is getting really rubbish since coming out of intensive care  so I try n use the treadmill for about 15 minutes to exercise my legs n walking. It might hit sound like much hit its a mile stone for someone with mitochondrial disease!
I have the mitochondria disease euromit coming up in March which will be interesting! 

No comments: