Welcome To My Blog...

This blog follows my journey of 2 different cochlear implants and my condition: Multiple mitochondrial DNA deletions I have started this blog 15 yrs too late but ill try my best to fit it all in! I have packed a lot of medical jargon into my life since I was 8.

There has been happiness and tears but I've come through it all with my family and my friends.I'm profoundly deaf as a result of a condition called Multiple mitochondrial DNA deletions or mitochondrial disease RRM2B as my professor Sir Dough Turnbull calls it! I have had since birth but I didn't find out this til I was 19. I have had 2 cochlear implants (at the age of 8 and then i lost the 1st cochlear implant in my right ear after 7 years due to a bad, accruing ear infection (which I couldnt fight off because of my mitochondrial condition) at the age of 15 and had a 2nd one implanted in my left ear that same year which I have now.

My Story

16 March 2019

Absence explained...

Sorry ive not updated my blog lately a lot has has happened over the lAst few months and im only just getting back in the social world as you would say.

In september my parents took me to newcastle as i hadnt been sleeping well and i began to have a unstoppable shake in my foot and have hallucinations  whitch was frightening for my family. Newcastle did tests which sho wed an infection  i dont know what it was but it lande me in intensive care for 10 days. I spent 3 weeks altogether in hospital before i was Home in huddersfield. A long tim

I have been given a CPAP machinÄ™  to helps me if i stop breathing in my sleep which took a long time to  get used fo! I feel like darth vader!

Its only now im getting back in social media n blogging again,  it has been a long few months   Getting back to myself  and with the Help of charlie gard foundation and their generosity they have provided me with a elevating bed and comfy chair that helps me to get up.

My parents have also invested in a stairlift to Help me tackle the stairs at home.

The worst thing is im on a mash diet i have to wait til april where they will xray my swallowing ive had it done before so i should be ok

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