Welcome To My Blog...

This blog follows my journey of 2 different cochlear implants and my condition: Multiple mitochondrial DNA deletions I have started this blog 15 yrs too late but ill try my best to fit it all in! I have packed a lot of medical jargon into my life since I was 8.

There has been happiness and tears but I've come through it all with my family and my friends.I'm profoundly deaf as a result of a condition called Multiple mitochondrial DNA deletions or mitochondrial disease RRM2B as my professor Sir Dough Turnbull calls it! I have had since birth but I didn't find out this til I was 19. I have had 2 cochlear implants (at the age of 8 and then i lost the 1st cochlear implant in my right ear after 7 years due to a bad, accruing ear infection (which I couldnt fight off because of my mitochondrial condition) at the age of 15 and had a 2nd one implanted in my left ear that same year which I have now.

My Story


17 December 2015

xmas 2015

well i was hoping to make xmas 2015 healthy (as possible could) but i was let down. i picked up a sickness bug the day before the annual meet up at my nanas and i was in pain the whole time and sick on the journey home! and that set off a mito attack. 
ive spent the last few days so frustrated at my body that it sent me to tears but all i can do is rest and walk about a bit to get stronger. 
its already been a week ive been like this but im trying to keep upbeat as theres nothing really anything i can do about it but thats how rare mito is i am so happy that i have at least people who are going through the same as me so they can relate and we can moan about it!
 Anyway i hope you all have a good christmas!
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