Welcome To My Blog...

This blog follows my journey of 2 different cochlear implants and my condition: Multiple mitochondrial DNA deletions I have started this blog 15 yrs too late but ill try my best to fit it all in! I have packed a lot of medical jargon into my life since I was 8.

There has been happiness and tears but I've come through it all with my family and my friends.I'm profoundly deaf as a result of a condition called Multiple mitochondrial DNA deletions or mitochondrial disease RRM2B as my professor Sir Dough Turnbull calls it! I have had since birth but I didn't find out this til I was 19. I have had 2 cochlear implants (at the age of 8 and then i lost the 1st cochlear implant in my right ear after 7 years due to a bad, accruing ear infection (which I couldnt fight off because of my mitochondrial condition) at the age of 15 and had a 2nd one implanted in my left ear that same year which I have now.

My Story


8 April 2014

FB AWARENESS PAGE

https://www.facebook.com/Mitoawareness

since a lot of people dont know about mitochondrial disease i have set up  mito adult support group and a mito a
wareness page on social media facebook! 
the above link is for the mito awareness page link if you can share it about if you can we need to get the info out about mito disease and how it affects us 
it is as wide spread as cancer and no one has ever heard of it and its researches and everyone i talk to always asks whats that? i explain about it and they have their opinion on it but each to their own!  maybe they wont care maybe they will but at least they know about it! 
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