Welcome To My Blog...

This blog follows my journey of 2 different cochlear implants and my condition: Multiple mitochondrial DNA deletions I have started this blog 15 yrs too late but ill try my best to fit it all in! I have packed a lot of medical jargon into my life since I was 8.

There has been happiness and tears but I've come through it all with my family and my friends.I'm profoundly deaf as a result of a condition called Multiple mitochondrial DNA deletions or mitochondrial disease RRM2B as my professor Sir Dough Turnbull calls it! I have had since birth but I didn't find out this til I was 19. I have had 2 cochlear implants (at the age of 8 and then i lost the 1st cochlear implant in my right ear after 7 years due to a bad, accruing ear infection (which I couldnt fight off because of my mitochondrial condition) at the age of 15 and had a 2nd one implanted in my left ear that same year which I have now.

My Story

1 August 2013


My neurologist Mr Turnbull wants me to carry on with gym and concentrate on sociable activities since everything else is doing well he wants me to do gym coz he doesn't want my muscles to seize up and so im also trying to meet new people through gym.

ive gone up to 11stone which is fine according to my dietician but she wants me to try and do more exercise and stick to 10stone so I need to lose some pounds

im starting off slow doing 15 mins on the treadmill and 10 mins on the cycle bike.
it might not sound like much not but il hopefully get better and start doing more and more as time goes on I only go on a Wednesday as I go with my carer Victoria which is good coz she spurs me on which is positive for me
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