Welcome To My Blog...

This blog follows my journey of 2 different cochlear implants and my condition: Multiple mitochondrial DNA deletions I have started this blog 15 yrs too late but ill try my best to fit it all in! I have packed a lot of medical jargon into my life since I was 8.

There has been happiness and tears but I've come through it all with my family and my friends.I'm profoundly deaf as a result of a condition called Multiple mitochondrial DNA deletions or mitochondrial disease RRM2B as my professor Sir Dough Turnbull calls it! I have had since birth but I didn't find out this til I was 19. I have had 2 cochlear implants (at the age of 8 and then i lost the 1st cochlear implant in my right ear after 7 years due to a bad, accruing ear infection (which I couldnt fight off because of my mitochondrial condition) at the age of 15 and had a 2nd one implanted in my left ear that same year which I have now.

My Story


26 February 2013

removal of brow suspenson...

We traveled to middlesbrough before going to newcastle to drop in on my nana and wish my aunty a happy 50th bday! and see my counins and 2nd cuz baby evie she gets cuter every time i see her!

After saying goodbye to my nana we traveled to newcastle and stopped over at premier inn to be there early the next day.  We got there at 10am to see the eye doc Patrick and the plastic surgeon to discuss what they would be doing basically the plan was to get rid as  much as possible of the brow suspenson as possible as it was causing constant cysts on my eyelid and get rid of the cyst that was already there.

 we then had  had a brief update on how i was doing mito wise with Victoria Nesbitt she was happy with my progress so far.

Then come 4pm it was time for the operation and dad came down with me to hold my hand as i hate having needles done  and my mum is terried of them! It's always the first needle that stings then its completely painless!

Patrick same to see us after the op and they told us that they managed to get all of the sillicone out he also said that the cyst burst and left a hole the size of a 1p so he had to stretch the eyelid and stitch it to my cheek to give it chance to make enough new skin to cover the hole and  and patched me up and i havet o keep it on for 2 weeks

if the skin hasnt made enough new skin they will give me a skin graft but hoping not!

At least the padding is painless!
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