Welcome To My Blog...

This blog follows my journey of 2 different cochlear implants and my condition: Multiple mitochondrial DNA deletions I have started this blog 15 yrs too late but ill try my best to fit it all in! I have packed a lot of medical jargon into my life since I was 8.

There has been happiness and tears but I've come through it all with my family and my friends.I'm profoundly deaf as a result of a condition called Multiple mitochondrial DNA deletions or mitochondrial disease RRM2B as my professor Sir Dough Turnbull calls it! I have had since birth but I didn't find out this til I was 19. I have had 2 cochlear implants (at the age of 8 and then i lost the 1st cochlear implant in my right ear after 7 years due to a bad, accruing ear infection (which I couldnt fight off because of my mitochondrial condition) at the age of 15 and had a 2nd one implanted in my left ear that same year which I have now.

My Story


23 October 2010

2 weeks on from brow op...

My eyebrow op has gone well, any bruisnig or swelling i had  went down quite quickly which I was surprised with! My eye seems more open that my other but I still think it could be more open and just over the pupil but my doc can adjust that by 1mm if needs be in the next operation in November. Im quite pleased with it. I still have a stitch in my head but the ones on the eyelid have dissolved.  I have had no double vision since! I had a bit of trying to look at things more closely after the first few days but that has now settled. i was surprised at how I didnt really have much pain and any pain i had was helped by paracetamol.  My eyebrow was frozen for about a week and a half so my eyebrow woudlnt move if i tried and it was lower that my other one but its all gone back to normal now.

The stye eye that was drained is still a little bruised but i can tell the difference between how open my other eye is now.  im very pleased with it and hope the other op in november goes well too!
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