Welcome To My Blog...

This blog follows my journey of 2 different cochlear implants and my condition: Multiple mitochondrial DNA deletions I have started this blog 15 yrs too late but ill try my best to fit it all in! I have packed a lot of medical jargon into my life since I was 8.

There has been happiness and tears but I've come through it all with my family and my friends.I'm profoundly deaf as a result of a condition called Multiple mitochondrial DNA deletions or mitochondrial disease RRM2B as my professor Sir Dough Turnbull calls it! I have had since birth but I didn't find out this til I was 19. I have had 2 cochlear implants (at the age of 8 and then i lost the 1st cochlear implant in my right ear after 7 years due to a bad, accruing ear infection (which I couldnt fight off because of my mitochondrial condition) at the age of 15 and had a 2nd one implanted in my left ear that same year which I have now.

My Story

1 May 2010

Brow suspension email...

As you know from the Newcastle blog, I was waiting for someone to be in contact with me about the brow suspension lift that has had the procedure done. Today I got that email, and he hasn't had the same way of procedure because he had some tendon taken from his leg to do it but he is having the sillicon one done on the other eye in June so I might wait til then when he has had it done and I can ask him how it went and see the difference in his eye. I have asked him some more questions so im waiting for yet another email from him! Then I will make my choice wether to go ahead and put myself on the waiting list or wait ttil he has had it done himself.

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