Welcome To My Blog...

This blog follows my journey of 2 different cochlear implants and my condition: Multiple mitochondrial DNA deletions I have started this blog 15 yrs too late but ill try my best to fit it all in! I have packed a lot of medical jargon into my life since I was 8.

There has been happiness and tears but I've come through it all with my family and my friends.I'm profoundly deaf as a result of a condition called Multiple mitochondrial DNA deletions or mitochondrial disease RRM2B as my professor Sir Dough Turnbull calls it! I have had since birth but I didn't find out this til I was 19. I have had 2 cochlear implants (at the age of 8 and then i lost the 1st cochlear implant in my right ear after 7 years due to a bad, accruing ear infection (which I couldnt fight off because of my mitochondrial condition) at the age of 15 and had a 2nd one implanted in my left ear that same year which I have now.

My Story


22 March 2010

Don't worry...

I'm not gone... I've just been busy with my crafty things! The nerve centre has given me inspiration to paint and do lots more arty and crafty things! They also do exercise such as tai chi or games afternoons! I haven't been to tai chi or the games afternoons yet but im sure i will one day. They hope to get more people with neurological disorders to come to the nerve centre and to buy more art supplies and to pay for advertising because most people don't know they are there! it's a good place for neurological disorders to go to because they can get out of the house for a while and meet other people with same conditions. I've just been busy painting and all sorts..
The Newcastle visit to hospital is coming up soon so get that out the way! For now i'll nurse my sore throat that i caught off my dad! :P
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