Welcome To My Blog...

This blog follows my journey of 2 different cochlear implants and my condition: Multiple mitochondrial DNA deletions I have started this blog 15 yrs too late but ill try my best to fit it all in! I have packed a lot of medical jargon into my life since I was 8.

There has been happiness and tears but I've come through it all with my family and my friends.I'm profoundly deaf as a result of a condition called Multiple mitochondrial DNA deletions or mitochondrial disease RRM2B as my professor Sir Dough Turnbull calls it! I have had since birth but I didn't find out this til I was 19. I have had 2 cochlear implants (at the age of 8 and then i lost the 1st cochlear implant in my right ear after 7 years due to a bad, accruing ear infection (which I couldnt fight off because of my mitochondrial condition) at the age of 15 and had a 2nd one implanted in my left ear that same year which I have now.

My Story

9 November 2009

My Pro/Cons and rules for the cochlear implant...


You are still deaf without the external part on so you are still part of the deaf world but you just have the beauty of both hearing and deaf worlds.
I can listen to music
I can hear my family and friend's voices and still lipread
I can hear the TV without looking at the screen (sometimes without subtitles!)
I can hear a person without looking at them
I can hear birdsong, rain and all kinds of sounds
I have good speech
I have had my cochlear implant for 15 years now *even if i did have 2*
I can switch off whenever I want if i hate a sound or just have a headache!
Having the BTE small and discreet
I can tell the difference in accents and voices and different sounds.
It's not 100% hearing but it's good enough and clear enough once you get used to the mappings.


Group talking can be a pain with lots of people talking at once
Background noise such as loud music or lots of talking in
The operation eek
The programming of the ci. i hate having my map changed.
You need be careful of your implant area ie dont bump the area very hard!
When i'm in the car on the motorway, all i hear is the roar of the engine! argh

Other things to know about when you have a CI.

static electricity - ie a tv that has been on for a long time or clothes, you need to be careful not to touch them with the wire of the ci.
Air travel - you need to switch off the cochlear implant when the plane is taking off and landing, i tend to leave my cochlear off the entire journey from switching it off before getting on the plane and turning it back on gain when Im off the plane (cant be too careful!)
Meningitis- before you get the implant, or even after make sure you are protected against Meningitis by getting an injection.
Ear infections - this is an urgent matter, if you have an ear infection go see your cochlear implant doc as soon as possible.
X- rays - are fine although I usually take external part off for an x ray.
Any kind of electric surgery is a no no. If in doubt, consult your cochlear implant centre.
Shop security systems - are fine I've never had a problem with them but if you do,, you can show them the cochlear implant card
Airport security systems - these are different to shops and will scramble your mapping so ask the airport for a frisk search instead. I have never had a problem with this and airport understand. if they don't show them the cochlear implant card.

If in doubt with anything, contact your cochlear implant centre and they will always be happy to help you! :)

Hope this helps! x
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